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Project Scope:

To create engaging content on data privacy and data sharing that can be understood and used by the general population (any member of the public regardless of their sector or profession) covering topics such as what is being done to share clinical trial data and information, where data goes and how it is used, what data privacy is, why it is needed, why it is important and the differences between mandatory vs. voluntary data sharing. The project is to follow a similar approach to the Data Transparency (DT) Terminology Harmonisation project, this time aiming towards a more general audience to address commonly asked questions surrounding data privacy and data sharing. The Terminology Harmonisation project creates an excellent set of deliverables better suited for those who work with data sharing on a more technical level.

Current Status:

• 1.Publish Video 3: ‘What is Clinical Data?’

  2.Publish PHUSE-MRCT Infographics Collaboration

  3.Finalise the script for the last three videos in our series:

  -Video 4: ‘Journey of a Data Point’ 

  -Video 5: ‘What is Data Sharing?’ 

  -Video 6: ‘What is Data Privacy?’

Regular Project Meeting Day/Time:

• Bi-weekly: Fridays 3-4pm GMT

Key Skills:

• Literature review

• Experience in data handling, storage and transfer

• Experience in processing metadata associated with imaging