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  • Created by Former user , last modified by Former user on Apr 15, 2021
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Project Scope

Currently there is inconsistency in terminology used in the field of data sharing and disclosure. These inconsistencies exist across industry and regulatory agencies as well as within PHUSE and cause unnecessary confusion. This project aims to collect, align and standardise terminology and their definitions used in future deliverables. Previous PHUSE deliverables as well as key publications in the field, will be examined to create proposal for baseline list of terms and definitions to be used moving forward.

Project Leads

Email

Lukasz Kniola

lukasz.kniola@biogen.com

Sarah Balay

shewitt@privacy-analytics.com

Lauren White (PHUSE Project Coordinator)

lauren@phuse.global

Objectives and DeliverablesTimelines
List of sources utilisedQ3 2020 
List of terms and definitionsQ3 2020
White Paper describing the approach used to standardise the terminology and definitions Q4 2020 


CURRENT STATUS Q42020

Listing terms and definitions and categorised Terminologies.

Project Members 

Organisation 
Bhavna NandaKinapse
Devaki ThavarajahIndustry

George Allan

Janssen Research & Development

Helle Gawrylewski

Industry

Jennie McGuirk

Icon

Lora Killian

Pfizer
Mekhala AcharyaTakeda

Raina Agarwal

Kinapse

Sowmya Gabbula

Alnylam Pharmaceuticals
 
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