The field of data transparency within clinical development is fast-moving. PHUSE recognised the need to share information, advice and suggestions across all pharma companies (big and small), vendors and software companies, in a way that would not be cost-prohibitive – and so, the PHUSE Data Transparency Multi-Day Event was created.

Our first event was the Summer Event, back in June 2020. We have just held our second Event – the Data Transparency Winter Event (19–21 January). This event ran for 2.5 hours each day from 15:00 to 17:30 (GMT). Each day explored a key topic: New Challenges for Data Sharing, Regulatory Submissions, and Explore Technologies. Attendees had the opportunity to listen to three/four live presentations, and then participate in a joint panel discussion/Q&A session based on the content from the day.

The event saw a variety of innovative presentations including:

Data sharing of genetic data and rare diseases
Experiences with regulatory submissions and insights into the MHRA Data Transparency approach
Use of synthetic data to support under-recruiting studies
Programming languages to implement data de-identification
Data disclosure strategy
Use of Plain Language Summary to support patient engagement

Thank you to our DT Winter Event 2021 sponsors...

A big thank you to all of our sponsors of the DT Winter Event 2021. This virtual event allowed us to screen our sponsors’ promotional videos in between presentation intervals, which was well received by our attendees.

Click below to view sponsor videos from our Platform Sponsor Privacy Analytics, and our Media Contributors Kinapse and d-wise, to find out more about what these companies do.