Data Transparency Autumn Event 2024 – Registration now Open |
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The PHUSE Data Transparency Autumn Event took place from 17–19 September 2024. During this virtual event, presentations were delivered across the three days in bitesize chunks. Each day also hosted a panel discussion and Q&A session focused on the day's themes. Presentations and event recordings will be available soon. |
Agenda | |
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Presentation Title | Speaker(s) |
Day 1 – 17 September | |
Event-Based Access Control – Game Changer for Autonomous Security and Transparent Data Sharing | Amit Gautam, Abluva |
Rare Disease Data – Overcoming Barriers to Controlled Access Sharing | Helen Spotswood, Roche & Karolina Stępniak, AstraZeneca |
Optimising the Utility of Anonymised Data: A Clinical Case Study | Lisa Pilgram, University of Ottawa |
Diversity in Clinical Trial Data Transparency: A New Horizon for Data Sharing with Truthful Statistics | Luk Arbuckle, Privacy Analytics & Stephen Bamford, Johnson & Johnson |
Day 2 – 18 September | |
Disclosure Without Exposure – Upstream Strategies for Enabling AI to Effectively and Efficiently Protect Clinical Data | Honz Slipka, Certara |
Harnessing the Power of Artificial Intelligence (AI) in Accelerating Production of Clinical Documentation: A Case Study with Plain Language Summaries (PLS) | Kathi Künnemann, Staburo |
De-Identification of Medical Data for AI Training, Speeding Up Clinical Trials, and Enabling Healthcare Research | Patricia Thaine, Private AI |
Leveraging Agentic AI Networks to Automate Transparency Activities | Woo Song, Xogene |
Day 3 – 19 September | |
Privacy Methodology Implementation: Sharing Experience from the Field | Véronique Poinsot, Sanofi |
True Re-Identification Risk Threshold – Aggregated-Level Clinical Information Impact on Anonymisation Methods Applied to Individual Patient-Level Data (IPLD) | Agnieszka Głowińska & Łukasz Szyszka, AstraZeneca |
Writing Better CSRs to Facilitate Anonymisation for Clinical Data Publication | Cathal Gallagher & Laura Dodd, Instem |
A Data Transparency Odyssey - A Decade of Data Sharing | Alex Hughes, Roche & Brent Caldwell, Novartis |
Data Transparency Autumn Event Sponsors |
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Virtual Event Sponsors |
Sponsor Flyers |
Sponsorship |
Hosting the Data Transparency Event digitally means that no matter where you are in the world you can participate. It provides the industry with a broader opportunity to share knowledge on a global scale, connecting through the virtual event platform. The sponsor options offer a range of benefits with ample company exposure. See the prospectus for more detail. |
Data Transparency Working Group Leads |
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